MND - Details
Listed below are the collaborating sites involved in Motor Neurone Disease patient recruitment for TONiC.
The contact details given are that of the TONiC ‘Champion’. This is a professional working at each site as a dedicated TONiC representative and is point of contact for that site.
Basildon and Thurrock University Hospital
| Principal Investigator: | Dr Andrea Malaspina |
| Position: | Consultant Neurologist |
| Champion: | Georgina Butt Clinical Trials Practitioner Georgina.Butt@btuh.nhs.uk |
| Institution: | Basildon & Thurrock University Hospital, Nethermayne Essex Essex, Essex United Kingdom, SS16 5NL |
| Telephone: | 01268 524900 |
Brighton and Sussex
| Principal Investigator: | Prof Nigel Leigh prof |
| Position: | Principle Investigator |
| Champion: | Mrs Dee Mullen Champion Dee.Mullan@bsuh.nhs.uk |
| Institution: | Royal Sussex County Hospital Eastern Road Sussex, Brighton, East United Kingdom, BN2 5BE |
| Telephone: | 01273696955 |
Cambridge
| Principal Investigator: | Dr Rhys Roberts |
| Position: | Consultant Neurologist |
| Champion: | Danielle Johnson Nurse Danielle.johnson@addenbrookes.nhs.uk 01223 274564 |
| Institution: | Department of Neurology Box 165 Addenbrooke's Hospital Hills Road Cambridge, Cambridge United Kingdom, CB2 0QQ |
| Telephone: | 01223 274564 |
Cambridge
| Principal Investigator: | Ms Joanna Sasson BSc RGN |
| Position: | Co-ordinator MND Care Centre |
| Champion: | Lucy Canovas Research Nurse lucy.canovas1@nhs.net 01223 218630 |
| Institution: | Windsor House Fulbourn Hospital Cambridge United Kingdom, CB21 5EF |
Cardiff and Vale Health Board
| Champion: | Mim Evans Team Lead Champion mim.evans@wales.nhs.uk 02921 847855 |
| Institution: | Cardiff and Vale Health Board University Hospital of Wales Clinical Research Facility C Block Heath Park Cardiff, Cardiff Wales, CF14 4XW |
| Telephone: | 02921 847855 |
Cheshire & Wirral
| Principal Investigator: | Dr. Patricia Mottram |
| Position: | Research Fellow |
| Champion: | Theresa Whittingham Research Facilitator Theresa.Whittingham@cwp.nhs.uk |
| Institution: | Cheshire and Wirral Partnership NHS Foundation Trust Academic Unit Lower Ground Floor Stein Centre Church Road Birkenhead, Wirral United Kingdom, CH42 0LQ |
| Telephone: | 0151 488 7327 |
Cumbria
| Principal Investigator: | Dr. David Footitt |  |
| Position: | Professor of Neurology | |
| Champion: | Ms Gillian Webster Research Nurse gillian.webster@cumbria.nhs.uk | |
| Institution: | Furness General Dalton Lane Barrow-In-Furness, Cumbria United Kingdom, LA14 4LF | |
| Telephone: | 01228 602199 | |
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Cwm Taf Morgannwg Univeristy
| Principal Investigator: | Mrs Ruth Glew Champion |
| Position: | Lead Care coordinator for MND |
| Champion: | Miss Ellie Davies ellie.davies4@wales.nhs.uk |
| Institution: | Research and Development Department Office Princess of Wales Hospital Coity Road , Bridgend Wales, CF31 1RQ |
| Telephone: | 01656 752477 |
Dartford
| Principal Investigator: | Dr. Cathy Ellis |
| Position: | Consultant Neurologist |
| Champion: | Mrs. Helen Wooldridge Research Nurse hwooldridge@nhs.net |
| Institution: | Darent Valley Hospital Research Department Acorn House Darent Valley Hospital Dartford, Kent United Kingdom, DA2 8DA |
| Telephone: | 01322 428100 |
Edinburgh
| Principal Investigator: | Professor Siddharthan Chandran MBChB PhD |  |
| Position: | Professor of Neurology; Director of Centre for Clinical Brain Science; Director of the Euan MacDonald Centre | |
| Champion: | Laura Stephenson MND Scotland Research Nurse | |
| Institution: | Euan Macdonald Centre for MND research Rm: GU426E Chancellors Building 49 Little France Crescent Edinburgh, Edinburgh United Kingdon, EH16 4SB | |
| Telephone: | 0131 242 7985 | |
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Exeter
| Principal Investigator: | Dr. Timothy Harrower |  |
| Position: | Consultant | |
| Champion: | Sarah Irvine Senior Research Nurse sarah.irvine@nhs.net | |
| Institution: | Royal Devon & Exeter NHS Foundation Trust Noy Scott House RD&E, Barrack Road Exeter, Devon United Kingdom, EX2 5DW | |
| Telephone: | 01392 406979 | |
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Hywel Dda University Health Board Clinical Research Centre
| Principal Investigator: | Joe Annandale |
| Position: | Respiratory Nurse Specialist |
| Champion: | Debra Evans Research Nurse debra.w.evans@wales.nhs.uk 01554 779338 |
| Institution: | Ystwyth Building, Hafan Derwen St Davids Park Jobswell Road Carmarthen, Doogal Wales, SA31 3BB |
| Telephone: | 01554 779338 |
Lincolnshire
| Principal Investigator: | Professor Basil Sharrack |  |
| Position: | Consultant Neurologist; Honorary Senior Clinical Lecturer | |
| Champion: | Karen Warner Clinical Research Officer KAREN.WARNER@ulh.nhs.uk | |
| Institution: | Lincolnshire Clinical Research Facility Research and Development Building United Lincolnshire Hospitals NHS Trust Lincoln County Hospital Greetwell Road Lincoln, Lincolnshire United Kingdom, LN2 5QY | |
| Telephone: | 01522 573649 | |
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Liverpool
| Principal Investigator: | Professor Carolyn Young MD FRCP |  |
| Position: | Consultant Neurologist; Honorary Professor of Neurology | |
| Champion: | TONiC team Study Co-ordinators tonic@thewaltoncentre.nhs.uk 0151 529 5668 | |
| Institution: | The Walton Centre NHS Foundation Trust Lower Lane Liverpool, Merseyside United Kingdom, L9 7LJ | |
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London
| Principal Investigator: | Dr. Richard Orrell |
| Position: | Consultant Neurologist |
| Champion: | Tinashe Samakomva Senior Neurology Research Nurse tinashe.samakomva@nhs.net |
| Institution: | Neurology Research Nurse Office Ground Floor / 673 Medical School Building Royal Free Hospital Pond Street London United Kingdom, NW3 2PF |
| Telephone: | 020 7794 32329 |
London - King's College
| Principal Investigator: | Professor Ammar Al-Chalabi MBChB PhD FRCP DipStat |  |
| Position: | Professor of Neurology and Complex Disease Genetics; Honorary Consultant Neurologist; Director King's MND Care and Research Centre | |
| Champion: | Teresa Chiwera Research Nurse tchiwera@nhs.net 0203 299 7154 | |
| Institution: | Institute of Psychiatry King's College London 16 De Crespigny Park London United Kingdom, SE5 8AF | |
| Telephone: | 0207 848 0002 | |
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London - North West
| Principal Investigator: | Dr. Antonio Scalfari |
| Position: | Consultant Neurologist |
| Champion: | Cheryl Pavel Clinical Research Officer cpavel@nhs.net |
| Institution: | London North West Healthcare NHS Trust R&D Department Level 7 maternity block Northwick Park hospital Watford road Harrow, Middlesex United Kingdom, HA1 3UJ |
| Telephone: | 07768497662 |
LOROS Hospice
| Principal Investigator: | Prof Christina Faull |
| Position: | Consultant in Palliative Medicine |
| Champion: | Wendy Gamble Research Manager WendyGamble@loros.co.uk (0116) 231 3771 |
| Institution: | LOROS Hospice Groby Road Leicester Leicester, Leicester United Kingdom, LE3 9QE |
| Telephone: | (0116) 231 3771 |
Newcastle upon Tyne
| Principal Investigator: | Dr. Timothy Williams BMedSci MBBS PhD FRCP |  |
| Position: | Consultant Neurologist; Medical Director of Newcastle MND Care Centre | |
| Champion: | Ms Lisa Todd Research Assistant lisa.todd2@ntw.nhs.uk 0191 223 2740 | |
| Institution: | Regional Neurosciences Centre East DeNDRoN Northumberland Tyne & Wear NHS Trust St Nicholas Hospital Gosforth Newcastle upon Tyne United Kingdom, NE3 3XT | |
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North Devon
| Principal Investigator: | Dr. Timothy Harrower | |
| Position: | Consultant | |
| Champion: | Nathan Vernon Clinical Research Nurse nathan.vernon@nhs.net | |
| Institution: | Suite 1, Room 6 Chichester House North Devon District Hospital Raleigh Park Barnstaple, Devon United Kingdom, EX31 4JB | |
| Telephone: | 01271 311584 | |
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North East London NHS Foundation Trust
| Principal Investigator: | Ms Elizabeth Edmonds |
| Champion: | Miss Marta Chmielowska Marta.Chmielowska@nelft.nhs.uk 0300 555 9031 |
| Institution: | Research and Development 1st floor Maggie Lilley Suite Goodmayes Hospital Ilford London, Essex United Kingdon, IG3 8XJ |
| Telephone: | 0300 55 59031 |
North West Anglia NHS Foundation Trust
| Principal Investigator: | Dr John Thorpe |
| Position: | Consultant Neurologist |
| Champion: | Natalie Temple Stroke/Neurology Research Nurse neurologyresearch@pbh-tr.hs.uk 01733 673891 |
| Institution: | Peterborough City Hospital Edith Cavell Campus Bretton Gate Peterborough PE3 9GZ Peterborough, Bretton Gate United Kingdom, PE9 1UA |
| Telephone: | 01733 678000 |
Norwich
| Principal Investigator: | Dr. David Dick MBChB MD FRCP |  |
| Position: | Consultant Neurologist | |
| Champion: | Alison Wiltshire Research Administrator ALISON.WILTSHIRE@nnuh.nhs.uk 01603 286615 | |
| Institution: | DeNDRoN East Anglia Room S17 St Andrew's Lodge Julian Hospital Bowthorpe Road Norwich United Kingdom, NR2 3TD | |
| Telephone: | 01603 421826 / 0770 598322 | |
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Oxford
| Principal Investigator: | Professor Kevin Talbot MBBS BSc DPhil FRCP |  |
| Position: | Consultant Neurologist and Professor of Motor Neuron Biology | |
| Champion: | Jennifer Rolfe MND Occupational Therapist jennifer.rolfe@ndcn.ox.ac.uk 01865 231907 | |
| Institution: | Nuffield Department of Clinical Neurosciences Neurosciences Offices Level 3, West Wing John Radcliffe Hospital Oxford United Kingdom, OX3 9DU | |
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Plymouth
| Principal Investigator: | Prof Oliver Hanemann |
| Position: | Consultant Neurologist |
| Champion: | Catherine Hayden Team Leader/Specialist Research Nurse charden@nhs.net |
| Institution: | Bircham Park Morlaix Avenue Derriford Hospital Plymouth, Devon United Kingdom, PL6 8BQ |
| Telephone: | 01752 431807 |
Portsmouth
| Principal Investigator: | Dr. Georgina Burke |  |
| Position: | Consultant Neurologist | |
| Champion: | Catherine Edwards Clinical Trials Practitioner for DeNDRoN catherine.edwards@porthosp.nhs.uk | |
| Institution: | Queen Alexandra Hospital Southwick Hill Road Portsmouth, Hampshire United Kingdom, PO6 3LY | |
| Telephone: | 023 9228 6000 | |
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Preston
| Principal Investigator: | Dr Suresh Chhetri |
| Champion: | Janice Birt Research Nurse janice.birt@lthrt.nhs.uk 01772 528259 / 8225 |
| Institution: | Royal Preston Hospital Sharoe Green Lane Fulwood Hills Road Preston, Lancashire United Kingdom, PR2 9HT |
| Telephone: | 01772 522076 |
Salford / Manchester
| Principal Investigator: | Dr Amina Chaouch |
| Champion: | Nicola Seferta Research Assistant nicola.seferta@srft.nhs.uk |
| Institution: | Greater Manchester Neuroscience Centre Salford Royal NHS Foundation Trust Stott Lane Salford, Greater Manchester United Kingdom, M6 8HD |
| Telephone: | 0161 789 7373 |
Sheffield
| Principal Investigator: | Dr. Christopher McDermott MBChB PhD FRCP |  |
| Position: | Senior Lecturer and Honorary Consultant Neurologist | |
| Champion: | Ms Stacy Young Clinical Research Manager stacy.young@sheffield.ac.uk | |
| Institution: | Sheffield Teaching Hospitals Sheffield Institute of Translational Neuroscience (SITraN) 385A Glossop Road Sheffield United Kingdom, S10 2HQ | |
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St Nicholas Hospital
| Principal Investigator: | Dr. Timothy Williams BMedSci MBBS PhD FRCP | |
| Position: | Consultant Neurologist; Medical Director of Newcastle MND Care Centre | |
| Institution: | Tyne & Wear NHS Trust St Nicholas Hospital Gosforth Newcastle upon Tyne United Kingdom Newcastle, Newcastle United Kingdom, NE3 3XT | |
| Telephone: | 0191 246 7388 | |
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Staffordshire & Stoke on Trent
| Principal Investigator: | Janette Walsh |
| Position: | Occupational Therapy Clinical Specialist |
| Champion: | Johanne Tomlinson Research Delivery Team Leader Johanne.tomlinson@nhs.net 07788917111 |
| Institution: | Staffordshire & Stoke on Trent Partnership NHS Trust Bentilee Neighbourhood Clinic Dawlish Drive Bentilee Stoke on Trent United Kingdom, ST2 0EU |
| Telephone: | 01782 673506 |
Swansea Bay University Health Board
| Principal Investigator: | Mrs Ruth Glew Champion |
| Position: | Lead Care coordinator for MND |
| Deputy PI: | Mrs Caroline Bidder |
| Champion: | Mrs Ruth Glew Champion Lead Care coordinator for MND Caroline.Bidder@wales.nhs.uk 01792-703706 |
| Institution: | Ty Olwen Morriston Hospital Heol Maes Eglwys Swansea, Swansea Wales, SA6 6NL |
| Telephone: | 01792-703706 |
University College London
| Principal Investigator: | Jan Clarke |
| Position: | Consultant Nurse for Motor Neurone Disease |
| Champion: | Luca Zampedri Clinical Research Nurse luca.zampedri@nhs.net 02031087507 |
| Institution: | National Hospital for Neurology & Neurosurgery Queen Square London, England United Kingdom, WC1N 3BG |
| Telephone: | 0203 448 3517 |
West Suffolk
| Principal Investigator: | Dr. Francesca Crawley |
| Position: | Consultant Neurologist |
| Champion: | Dr. Francesca Crawley Consultant Neurologist Francesca.Crawley@wsh.nhs.uk |
| Institution: | West Suffolk NHS Foundation Trust Hardwick Lane Bury St Edmunds, Suffolk United Kingdom, IP33 2QZ |
| Telephone: | 01284 712610 |
Worcestershire
| Principal Investigator: | Dr. Tom Heafield |
| Position: | Consultant Neurologist |
| Champion: | Julie Wollaston Research Nurse julie.wollaston@nhs.net |
| Institution: | 3 Kings Court Worcestershire Royal Hospital Charles Hastings Way Worcester, Worcestershire United Kingdom, WR5 1DD |
| Telephone: | 01905 760825 |
York
| Principal Investigator: | Dr. Clare Johnston |
| Position: | Consultant Neurologist |
| Champion: | Emma Temlett Research Nurse |
| Institution: | NIHR Clinical Research Network: Yorkshire and Humber Clinical Research Scarborough Hospital Woodlands Drive Scarborough, North Yorkshire United Kingdom, YO12 6QL |
| Telephone: | 01723 342384 |
TONiC is co-ordinated by Professor Carolyn Young and the TONiC team at The Walton Centre NHS Foundation Trust. The following organisations have supported TONiC by contributing funds
