MND - Details

Listed below are the collaborating sites involved in Motor Neurone Disease patient recruitment for TONiC.

The contact details given are that of the TONiC ‘Champion’. This is a professional working at each site as a dedicated TONiC representative and is point of contact for that site.


Abertawe Bromorgannwg University Health Board

Principal Investigator:Mrs Ruth Glew Champion
Position:Lead Care coordinator for MND
Deputy PI:Mrs Caroline Bidder
Champion:Mrs Ruth Glew Champion
 Lead Care coordinator for MND
 Caroline.Bidder@wales.nhs.uk
 01792-703706
Institution:Ty Olwen Morriston Hospital
Heol Maes Eglwys
Swansea, Swansea
Wales, SA6 6NL
Telephone:01792-703706

Basildon and Thurrock University Hospital

Principal Investigator:Dr Andrea Malaspina
Position:Consultant Neurologist
Champion:Georgina Butt
 Clinical Trials Practitioner
 Georgina.Butt@btuh.nhs.uk
Institution:Basildon & Thurrock University Hospital,
Nethermayne
Essex
Essex, Essex
United Kingdom, SS16 5NL
Telephone:01268 524900

Brighton and Sussex

Principal Investigator:Prof Nigel Leigh prof
Position:Principle Investigator
Champion:Mrs Dee Mullen
 Champion
 Dee.Mullan@bsuh.nhs.uk
Institution:Royal Sussex County Hospital
Eastern Road
Sussex, Brighton, East
United Kingdom, BN2 5BE
Telephone:01273696955

Cambridge

Principal Investigator:Dr Rhys Roberts
Position:Consultant Neurologist
Champion:Danielle Johnson
 Nurse
 Danielle.johnson@addenbrookes.nhs.uk
 01223 274564
Institution:Department of Neurology
Box 165
Addenbrooke's Hospital
Hills Road
Cambridge, Cambridge
United Kingdom, CB2 0QQ
Telephone:01223 274564

Cambridge

Principal Investigator:Ms Joanna Sasson BSc RGN
Position:Co-ordinator MND Care Centre
Champion:Lucy Canovas
 Research Nurse
 lucy.canovas1@nhs.net
 01223 218630
Institution:Windsor House
Fulbourn Hospital
Cambridge
United Kingdom, CB21 5EF

Cardiff and Vale Health Board

Champion:Mim Evans Team Lead
 Champion
 mim.evans@wales.nhs.uk
 02921 847855
Institution:Cardiff and Vale Health Board
University Hospital of Wales
Clinical Research Facility
C Block
Heath Park
Cardiff, Cardiff
Wales, CF14 4XW
Telephone:02921 847855

Cheshire & Wirral

Principal Investigator:Dr. Patricia Mottram
Position:Research Fellow
Champion:Theresa Whittingham
 Research Facilitator
 Theresa.Whittingham@cwp.nhs.uk
Institution:Cheshire and Wirral Partnership NHS Foundation Trust
Academic Unit
Lower Ground Floor
Stein Centre
Church Road
Birkenhead, Wirral
United Kingdom, CH42 0LQ
Telephone:0151 488 7327

Cumbria

Principal Investigator:Dr. David FootittDr. David Footitt
Position:Professor of Neurology
Champion:Ms Gillian Webster
 Research Nurse
 gillian.webster@cumbria.nhs.uk
Institution:Furness General
Dalton Lane
Barrow-In-Furness, Cumbria
United Kingdom, LA14 4LF
Telephone:01228 602199
Dr. David Footitt

Dartford

Principal Investigator:Dr. Cathy Ellis
Position:Consultant Neurologist
Champion:Mrs. Helen Wooldridge
 Research Nurse
 hwooldridge@nhs.net
Institution:Darent Valley Hospital
Research Department
Acorn House
Darent Valley Hospital
Dartford, Kent
United Kingdom, DA2 8DA
Telephone:01322 428100

Edinburgh

Principal Investigator:Professor Siddharthan Chandran MBChB PhDProfessor Siddharthan Chandran
Position:Professor of Neurology; Director of Centre for Clinical Brain Science; Director of the Euan MacDonald Centre
Champion:Laura Stephenson
 MND Scotland Research Nurse
Institution:Euan Macdonald Centre for MND research
Rm: GU426E
Chancellors Building
49 Little France Crescent
Edinburgh, Edinburgh
United Kingdon, EH16 4SB
Telephone:0131 242 7985
Professor Siddharthan Chandran

Exeter

Principal Investigator:Dr. Timothy HarrowerDr. Timothy Harrower
Position:Consultant
Champion:Sarah Irvine
 Senior Research Nurse
 sarah.irvine@nhs.net
Institution:Royal Devon & Exeter NHS Foundation Trust
Noy Scott House
RD&E, Barrack Road
Exeter, Devon
United Kingdom, EX2 5DW
Telephone:01392 406979
Dr. Timothy Harrower

Hywel Dda University Health Board Clinical Research Centre

Principal Investigator:Joe Annandale
Position:Respiratory Nurse Specialist
Champion:Debra Evans
 Research Nurse
 debra.w.evans@wales.nhs.uk
 01554 779338
Institution:Ystwyth Building, Hafan Derwen
St Davids Park
Jobswell Road
Carmarthen, Doogal
Wales, SA31 3BB
Telephone:01554 779338

King's Lynn

Principal Investigator:Dr. Claire Mc Carthy
Position:Consultant Neurologist
Champion:Tracey Fuller
 Research Nurse
 Tracy.Fuller@qehkl.nhs.uk
Institution:The Queen Elizabeth Hospital NHS
Foundation Trust
Gayton Road
King's Lynn, Norfolk
United Kingdom, PE30 4ET
Telephone:01553 214572

Lincolnshire

Principal Investigator:Professor Basil SharrackProfessor Basil Sharrack
Position:Consultant Neurologist; Honorary Senior Clinical Lecturer
Champion:Karen Warner
 Clinical Research Officer
 KAREN.WARNER@ulh.nhs.uk
Institution:Lincolnshire Clinical Research Facility
Research and Development Building
United Lincolnshire Hospitals NHS Trust
Lincoln County Hospital
Greetwell Road
Lincoln, Lincolnshire
United Kingdom, LN2 5QY
Telephone:01522 573649
Professor Basil Sharrack

Liverpool

Principal Investigator:Professor Carolyn Young MD FRCPProfessor Carolyn Young
Position:Consultant Neurologist; Honorary Professor of Neurology
Champion:TONiC team
 Study Co-ordinators
 tonic@thewaltoncentre.nhs.uk
 0151 529 5668
Institution:The Walton Centre NHS Foundation Trust
Lower Lane
Liverpool, Merseyside
United Kingdom, L9 7LJ
Professor Carolyn Young

London

Principal Investigator:Dr. Richard Orrell
Position:Consultant Neurologist
Champion:Tinashe Samakomva
 Senior Neurology Research Nurse
 tinashe.samakomva@nhs.net
Institution:Neurology Research Nurse Office
Ground Floor / 673
Medical School Building
Royal Free Hospital
Pond Street
London
United Kingdom, NW3 2PF
Telephone:020 7794 32329

London - King's College

Principal Investigator:Professor Ammar Al-Chalabi MBChB PhD FRCP DipStatProfessor Ammar Al-Chalabi
Position:Professor of Neurology and Complex Disease Genetics; Honorary Consultant Neurologist; Director King's MND Care and Research Centre
Champion:Teresa Chiwera
 Research Nurse
 tchiwera@nhs.net
 0203 299 7154
Institution:Institute of Psychiatry
King's College London
16 De Crespigny Park
London
United Kingdom, SE5 8AF
Telephone:0207 848 0002
Professor Ammar Al-Chalabi

London - North West

Principal Investigator:Dr. Antonio Scalfari
Position:Consultant Neurologist
Champion:Cheryl Pavel
 Clinical Research Officer
 cpavel@nhs.net
Institution:London North West Healthcare NHS Trust
R&D Department
Level 7 maternity block
Northwick Park hospital
Watford road
Harrow, Middlesex
United Kingdom, HA1 3UJ
Telephone:07768497662

LOROS Hospice

Principal Investigator:Prof Christina Faull
Position:Consultant in Palliative Medicine
Champion:Wendy Gamble
 Research Manager
 WendyGamble@loros.co.uk
 (0116) 231 3771
Institution:LOROS Hospice
Groby Road
Leicester
Leicester, Leicester
United Kingdom, LE3 9QE
Telephone:(0116) 231 3771

MAIDSTONE AND TUNBRIDGE WELLS NHS TRUST

Principal Investigator:Dr Gerard Saldanha
Champion:Ms Stephanie Mc Kinley
 smckinley@nhs.net
 01622 228728
Institution:The Tunbridge Wells Hospital
Neurology Department
Tonbridge Rd
Tunbridge Wells
United Kingdom
Tunbridge , Kent
United Kingdom, TN2 4QJ
Telephone:01622 228728

Newcastle upon Tyne

Principal Investigator:Dr. Timothy Williams BMedSci MBBS PhD FRCPDr. Timothy Williams
Position:Consultant Neurologist; Medical Director of Newcastle MND Care Centre
Champion:Ms Lisa Todd
 Research Assistant
 lisa.todd2@ntw.nhs.uk
 0191 223 2740
Institution:Regional Neurosciences Centre
East DeNDRoN
Northumberland
Tyne & Wear NHS Trust
St Nicholas Hospital
Gosforth
Newcastle upon Tyne
United Kingdom, NE3 3XT
Dr. Timothy Williams

North Devon

Principal Investigator:Dr. Timothy HarrowerDr. Timothy Harrower
Position:Consultant
Champion:Nathan Vernon
 Clinical Research Nurse
 nathan.vernon@nhs.net
Institution:Suite 1, Room 6
Chichester House
North Devon District Hospital
Raleigh Park
Barnstaple, Devon
United Kingdom, EX31 4JB
Telephone:01271 311584
Dr. Timothy Harrower

North East London NHS Foundation Trust

Principal Investigator:Ms Elizabeth Edmonds
Champion:Miss Marta Chmielowska
 Marta.Chmielowska@nelft.nhs.uk
 0300 555 9031
Institution:Research and Development
1st floor Maggie Lilley Suite
Goodmayes Hospital
Ilford
London, Essex
United Kingdon, IG3 8XJ
Telephone:0300 55 59031

North West Anglia NHS Foundation Trust

Principal Investigator:Dr John Thorpe
Position:Consultant Neurologist
Champion:Natalie Temple
 Stroke/Neurology Research Nurse
 neurologyresearch@pbh-tr.hs.uk
 01733 673891
Institution:Peterborough City Hospital
Edith Cavell Campus
Bretton Gate
Peterborough
PE3 9GZ
Peterborough, Bretton Gate
United Kingdom, PE9 1UA
Telephone:01733 678000

Norwich

Principal Investigator:Dr. David Dick MBChB MD FRCPDr. David Dick
Position:Consultant Neurologist
Champion:Alison Wiltshire
 Research Administrator
 ALISON.WILTSHIRE@nnuh.nhs.uk
 01603 286615
Institution:DeNDRoN East Anglia
Room S17 St Andrew's Lodge
Julian Hospital
Bowthorpe Road
Norwich
United Kingdom, NR2 3TD
Telephone:01603 421826 / 0770 598322
Dr. David Dick

Oxford

Principal Investigator:Professor Kevin Talbot MBBS BSc DPhil FRCPProfessor Kevin Talbot
Position:Consultant Neurologist and Professor of Motor Neuron Biology
Champion:Jennifer Rolfe
 MND Occupational Therapist
 jennifer.rolfe@ndcn.ox.ac.uk
 01865 231907
Institution:Nuffield Department of Clinical Neurosciences
Neurosciences Offices
Level 3, West Wing
John Radcliffe Hospital
Oxford
United Kingdom, OX3 9DU
Professor Kevin Talbot

Plymouth

Principal Investigator:Prof Oliver Hanemann
Position:Consultant Neurologist
Champion:Catherine Hayden
 Team Leader/Specialist Research Nurse
 charden@nhs.net
Institution:Bircham Park
Morlaix Avenue
Derriford Hospital
Plymouth, Devon
United Kingdom, PL6 8BQ
Telephone:01752 431807

Portsmouth

Principal Investigator:Dr. Georgina BurkeDr. Georgina Burke
Position:Consultant Neurologist
Champion:Catherine Edwards
 Clinical Trials Practitioner for DeNDRoN
 catherine.edwards@porthosp.nhs.uk
Institution:Queen Alexandra Hospital
Southwick Hill Road
Portsmouth, Hampshire
United Kingdom, PO6 3LY
Telephone:023 9228 6000
Dr. Georgina Burke

Preston

Principal Investigator:Dr. Tahir Majeed MBBS Phd. FACP. FRCPDr. Tahir Majeed
Position:Consultant Neurologist; Training Programme Director; Northwest Deanery
Champion:Janice Birt
 Research Nurse
 janice.birt@lthrt.nhs.uk
 01772 528259 / 8225
Institution:Royal Preston Hospital
Sharoe Green Lane
Fulwood
Hills Road
Preston, Lancashire
United Kingdom, PR2 9HT
Telephone:01772 522076
Dr. Tahir Majeed

Salford / Manchester

Principal Investigator:Dr. John Ealing BSc(Hons), MBBS, FRCP, DPhilDr. John Ealing
Position:Consultant Neurologist and Co-Director of the MND Care Centre
Champion:Nicola Seferta
 Research Assistant
 nicola.seferta@srft.nhs.uk
Institution:Greater Manchester Neuroscience Centre
Salford Royal NHS Foundation Trust
Stott Lane
Salford, Greater Manchester
United Kingdom, M6 8HD
Telephone:0161 789 7373
Dr. John Ealing

Sheffield

Principal Investigator:Dr. Christopher McDermott MBChB PhD FRCPDr. Christopher McDermott
Position:Senior Lecturer and Honorary Consultant Neurologist
Champion:Ms Stacy Young
 Clinical Research Manager
 stacy.young@sheffield.ac.uk
Institution:Sheffield Teaching Hospitals
Sheffield Institute of Translational Neuroscience (SITraN)
385A Glossop Road
Sheffield
United Kingdom, S10 2HQ
Dr. Christopher McDermott

Southampton

Principal Investigator:Dr. Ashwin Pinto MBChB MA FRCP DPhilDr. Ashwin Pinto
Position:Consultant Neurologist
Champion:Veena Agarwal
 Senior Research Physiotherapist
 veena.agarwal@uhs.nhs.uk
 023 8120 6379
Institution:Wessex Neurological Centre
Southampton General Hospital
Tremona Road
Southampton
United Kingdom, SO16 6YD
Dr. Ashwin Pinto

St Nicholas Hospital

Principal Investigator:Dr. Timothy Williams BMedSci MBBS PhD FRCPDr. Timothy Williams
Position:Consultant Neurologist; Medical Director of Newcastle MND Care Centre
Institution:Tyne & Wear NHS Trust
St Nicholas Hospital
Gosforth
Newcastle upon Tyne
United Kingdom
Newcastle, Newcastle
United Kingdom, NE3 3XT
Telephone:0191 246 7388
Dr. Timothy Williams

Staffordshire & Stoke on Trent

Principal Investigator:Janette Walsh
Position:Occupational Therapy Clinical Specialist
Champion:Johanne Tomlinson
 Specialist Lead Research Facilitator
 johanne.tomnlinson3@ssotp.nhs.uk
Institution:Staffordshire & Stoke on Trent Partnership
NHS Trust
Bentilee Neighbourhood Clinic
Dawlish Drive
Bentilee
Stoke on Trent
United Kingdom, ST2 0EU
Telephone:01782 673506

West Suffolk

Principal Investigator:Dr. Francesca Crawley
Position:Consultant Neurologist
Champion:Dr. Francesca Crawley
 Consultant Neurologist
 Francesca.Crawley@wsh.nhs.uk
Institution:West Suffolk NHS Foundation Trust
Hardwick Lane
Bury St Edmunds, Suffolk
United Kingdom, IP33 2QZ
Telephone:01284 712610

Worcestershire

Principal Investigator:Dr. Tom Heafield
Position:Consultant Neurologist
Champion:Julie Wollaston
 Research Nurse
 julie.wollaston@nhs.net
Institution:3 Kings Court
Worcestershire Royal Hospital
Charles Hastings Way
Worcester, Worcestershire
United Kingdom, WR5 1DD
Telephone:01905 760825

York

Principal Investigator:Dr. Clare Johnston
Position:Consultant Neurologist
Champion:Emma Temlett
 Research Nurse
Institution:NIHR Clinical Research Network: Yorkshire and Humber Clinical Research
Scarborough Hospital
Woodlands Drive
Scarborough, North Yorkshire
United Kingdom, YO12 6QL
Telephone:01723 342384

TONiC is co-ordinated by Professor Carolyn Young and the TONiC team at The Walton Centre NHS Foundation Trust. The following organisations have supported TONiC by contributing funds

mnda - motor neurone disease association
biogen idec
NOVARTIS
Merck
Roche
TEVA
NHS - National Institute for Health Research
Genzyme - A Sanofi Company
The Walton Center - NHS Foundation Trust